Since I'm home and I didn't write much last week (not ENTIRELY my fault-we asked for a keyboard and mouse for the Internet on Sunday and true to form, did not receive them until this morning.) After the ceiling flooded on my wing on Tuesday, Mike could have been having fun scavenging with the nurses to find stuff, but I didn't think about that until today. All the patients in that general area had to be evacuated. I was on the far end so it didn't effect me. I didn't even know about the flooding until I left my room to take laps around the win. The nurses all seemed frazzled.
GOOD, no GREAT NEWS!
I had another chest x-ray and the tumor has "shrunk dramatically" from the last time! No word on the exact size that it is now, but the techie-guys know the precise length, width, weight, date of birth, and SSN of my tumor. (I'm trying to come up some membership that my big, BAD, mean, nasty tumor would belong to and be a card-carrying member of, but I'm not that funny or creative right now. Luke? Blair? Ron?) I will ask those Irish lads the details next Friday when I see them on my clinic date. Consuming minds want to know.
Gotta love Dad. He and Mom came to visit on Tuesday and I decided to take a shower (it was necessary, trust me) but the nurse has to come in, flush my IV, and unplug me from the machine. Not to mention, I have to finish all the medication in my IV bag before I could go in the shower. Lots of minutes later, the nurse finally came in to help me out. Removing the plug from an IV is the least squeamish of the squeamish stuff and you don't even see anything because there's nothing to see. The IV is hiding under tape. Dad was also sitting across the room and could have averted his eyes if truly necessary, but he hobbled out in the hallway instead. :-) The nurse taped me up and I enjoyed a very long warm shower, even though it takes me maybe 15 seconds to wash and condition my "hair." Ahhh.
Dad went to his orthopedic doctor yesterday, but after calling my brother, Michael, in a near panic about needing someone to drive him home from the appointment because they might want to do surgery the minute he arrives at the appointment. The purpose of the appointment was to review the results of last week's MRIs. I tried to reach Dad before the appointment and he didn't answer his phone. My fear was that he was hiding at home because he didn't want to go! I called Mom and told her that Dad was panicking (I guess he calls Michael now) and suggested he get some of my old friend, Ativan, to handle the anxiety in case he does need surgery. The result is Dad tore a ligament and will need surgery, which is scheduled for May 30. I don't think any of us can handle waiting that long and we may all need some Ativan to survive! How the heck did I get so calm?
May 30th is the day after I finish my next round of chemo so I should be okay for that day because Mom doesn't need to worry about two people on the same day. Send your flowers, plants, and fruit baskets to Dad since I can't have anything! You might want to send him the Operation Game too as a little joke from me. ;-)
Other Mishmosh of Information
Yes, I'm home and my counts are still low, but I'm here. I'm still a little tired and worn out. My behind is sore from all those "road trips" to the potty. I've got a new rash on my hands that might be from a lotion or from washing my hands a gazillion times. I took a great, warm Epsom bath as soon as I got home to alleviate the "bottom pain" and I have some regular hydro cortisone cream from the drug store for my hands. Riley and Shelby are ecstatic to see us and I bet as soon as I curl up for a nap, I will find a furry small friend curled up beside me.
I thought prednisone makes you wacky, however oxycodone is worse. Woooo. I ended up taking Ambien last night because the oxycodone "brain flashes" in my head were pretty violent and I couldn't handle it. I had these mini "flashes" of some gross, violent image that just popped in my head. I finally hugged my teddy bear and the violence diminished, but then I had 5-10 mini-movie dreams but I would wake up startled. I did that for an hour and asked for the Ambien. It only happens after taking Oxycodone for 3-4 days straight because it must build up in your system. I might take a smaller dose tonight, but if my back doesn't hurt I'm skipping it. No wonder people go crazy on that stuff.